TOURETTE EXPERT PANEL

 FREE EVENT!

Please join us to learn from and get your questions answered by local experts in the field!

Saturday, April 18th, 2020

Pinstripes

1150 Willow Road

Northbrook

10:00 am

Check-In and Socialize

Light Breakfast

Exciting Bucket Raffles & Silent Auction

11:00 am

Meet the Panelists - Information Below

Questions & Answers

Buffet Lunch

Children Welcome!

Tourette Syndrome Camp USA will offer supervised activities including bowling and crafts for children between the

ages of 6 and 16.  

Funding for this workshop is made possible in part by the Centers for Disease Control and Prevention. The views expressed in written conference materials or publications and by speakers and moderators do not necessarily reflect the official policies of the Department of Health and Human Services, nor does the mention of trade names, commercial practices, or organizations imply endorsement by the U.S. Government.

Only 100 Tickets Available

Speaker Information

Matthew D. Cohen, JD 

Special Education Attorney & Author

A Guide to Special Education Advocacy: What Parents, Clinicians and Advocates Need to Know

 

Matt Cohen is founder of Matt Cohen and Associates and is well known for his work in special education law. He is the primary or collaborating author of several amendments to the mental health and special education laws of Illinois and has worked on legislation at the federal level. Matt has lectured all over the country on many special education topics.

 

Matt Cohen served as President of the Board of Directors of the national Children and Adults with Attention Deficit/Hyperactivity Disorders (CHADD) organization.   He was the chair of the nationally unique Illinois Attorney General's Special Education Advisory Committee for over 30 years.  He was a founding board member of the Council of Parent Attorneys and Advocates (COPAA), the national special education advocacy organization, and continues to serve on the Board.  In 2009, Matt authored the book A Guide to Special Education Advocacy: What Parents, Clinicians and Advocates Need to Know, published by Jessica Kingsley Press. Matt has had many articles published in various books, journals and magazines.  He has received many awards and honors and has  been recognized for his legal skills as an Illinois Super Lawyer from 2005 to the 2019 and has for many years been recognized as a Leading Lawyer of Illinois, including in 2019.

 

From 2017 to the present, Matt has served as one the Legal Representatives of the Chicago Public Schools Special Education Advocacy Group, which brought a successful class complaint to the Illinois State Board of Education, leading to ISBE finding systemic violations and ordering appointment of an ISBE monitor for CPS special education programs and to requiring a plan for Student Specific Corrective Action for students adversely impacted by CPS’ illegal policies.
While engaged in private law practice continuously since 1981, Matt served as the Executive Director and Corporate Counsel of a large psychiatric services corporation from 1985 to 1990.  Matt received his law degree from the University of Minnesota (1981) and his bachelor's degree from Grinnell College (1977). Matt has two terrific sons, Daniel and Nathan.  

MATT COHEN AND ASSOCIATES

Dr. Dustin Siegel

Licensed Clinical Psychologist

Anxiety Treatment Center of Greater Chicago

 

Dr. Siegel specializes in treating anxiety and related disorders in both adults and children. Having grown up with Tourette Syndrome himself, he is also dedicated to helping others take back control of their lives—and bodies—through the use of Comprehensive Behavioral Interventions for Tics (CBIT).

 

In his work at the Anxiety Treatment Center, Dr. Siegel is passionate about helping people conquer the thoughts, worries, and urges that stand in the way of success. His practice is based on cutting-edge research and treatment modalities that have been proven to get results. Using Exposure and Response Prevention (ERP), Cognitive Behavioral Therapy (CBT), and Acceptance and Commitment Therapy (ACT), Dr. Siegel’s sessions with clients examine the factors that are getting in the way before working on concrete steps to overcome them. He regularly meets with patients outside of the office to help deal with the anxiety that comes up in real-life situations, and offers intensive treatment—with therapy up to six days a week when needed—as part of the treatment team at the Anxiety Treatment Center.

 

A graduate of the University of Hartford, Dr. Siegel completed his internship at Clemson University before working as a postdoctoral Fellow at the Anxiety Treatment Center. He is a graduate of both the OCD Behavior Therapy Training Institute (BTTI) and the Tourette Syndrome Behavior Therapy Institute (TS-BTI). He has extensive training in Cognitive Behavioral Therapy, Exposure and Response Prevention, Habit Reversal, and Comprehensive Behavioral Intervention for Tics.

ANXIETY TREATMENT CENTER

Brian T. Lane, Panel Moderator

TAA Education Advisory Board & Diversity Advisory Board

Brian Lane is a public school administrator and educator with 25+ years of experience at all levels (Pre-K through Adult/College). He is currently a member of the Educational Advisory Board and the Diversity Advisory Board for the Tourette Association of America. Brian was diagnosed with Tourette at the age of 7.

 

Brian serves as the 7th Grade Team Leader and Choral/Theatre Director at Stonybrook Middle School in Indianapolis, Indiana. Brian has previously been an Assistant Principal, Dean of Students, and Behavior Specialist for several years in Indiana and Florida. He is an award-winning choral music and theatre educator, clinician, certified vocal music adjudicator, guest conductor, performer, and organist with experience teaching choral music and theatre throughout Indiana and Florida.

 

Brian was born and raised in Columbus, Indiana. He is a graduate of Ball State University in Muncie, Indiana with a Master of Arts in Education specializing in Building Level Leadership and Supervision. He received a Master of Music in Choral Conducting and his Bachelor of Music Education specializing in Choral and General Music from the Indiana University Jacobs School of Music in Bloomington, Indiana. In his free time, Brian serves a volunteer firefighter/EMT, enjoys playing golf, is an IHSAA Official in Basketball, Baseball, and Track/Cross Country, and is a former part-time police officer.

Tourette Connect Chicagoland is grateful for the support of the CDC and the TAA. Without their support and donations made by members of our community, this program would not be possible. If you would like to support our efforts, please donate below or contact us to make other arrangements.

Dr. Katie Kompoliti, MD

Professor, Department of Neurological Sciences

Rush University Medical Center

Education Director, Section of Movement Disorders Department of Neurological Sciences

Director, Tourette Center of Excellence

 

Aikaterini Kompoliti, MD, was born in Greece and completed her early education there, including medical school. After graduating from the University of Patras Medical School, Greece, she pursued her interest in neuroscience by completing a residency in neurology at Northwestern University, Chicago, followed by a fellowship in movement disorders at Rush University Medical Center, Chicago. After the completion of her fellowship, she became a faculty member in movement disorders in the Department of Neurological Sciences at Rush University Medical Center where she is currently professor of neurology.  She is the author and co-author of numerous publications. Her clinical interests as a principal investigator in research have focused on several therapeutic areas including studies to evaluate the safety and efficacy of new compounds to treat Parkinson's disease, Tourette syndrome, functional movement disorders and dystonia. Furthermore, she is the educational director of the section of movement disorders and the director of the movement disorders fellowship at Rush University Medical Center.  Dr. Kompoliti is the director of a Center of Excellence on Tourette syndrome and Tic Disorders at Rush University Medical Center.

RUSH TOURETTE CENTER OF EXCELLENCE

Dr. Leslie Mendoza Temple, MD, ABOIM

Clinical Associate Professor, Family Medicine
University of Chicago Pritzker School of Medicine
Medical Director, Integrative Medicine Program
NorthShore University HealthSystem

Dr. Leslie Mendoza Temple serves as the Medical Director of the Integrative Medicine Program at NorthShore University HealthSystem and as a Clinical Associate Professor in Family Medicine at the University of Chicago Pritzker School of Medicine. She is board-certified in Family Medicine and Integrative Medicine. She is the former Chair of the Medical Cannabis Advisory Board for the Illinois Department of Public Health and is a former Chair of the Policy Working Group for the Academic Consortium for Integrative Medicine and Health. 

As Medical Director, she leads one of the largest, most established teams of integrative practitioners in the Midwest. After residency training at Northwestern, she completed a two-year fellowship in Integrative Medicine at the University of Arizona under the supervision of Dr. Andrew Weil and Dr. Victoria Maizes. She also completed a two-year fellowship in Family Medicine Faculty Development at Northwestern. She loves teaching the next generation of physicians the art of combining integrative practices with conventional medicine. 

Prior to medical school, Dr. Mendoza Temple received her bachelor's degree in Economics while pursuing premedical studies at the University of California, Berkeley. While earning her medical degree at the University of Santo Tomas Faculty of Medicine and Surgery in the Philippines, her passion for complementary and integrative medicine evolved. She witnessed her patients' common use of herbs, folk medicine and spiritual practices in the face of challenging access to basic medical care, food, shelter, and clean water. 

Dr. Mendoza Temple believes that excellent support systems, positive outlook, good nutrition, adequate rest, and regular exercise provide the foundation for longevity. She works collaboratively with her patients’ primary care physicians, specialty physicians and holistic practitioners to ensure safe and effective treatment plans. Her practice includes adults, infants, children, and expectant mothers. 

In July 2014, she and her business partner opened Mingle Juice Bar in Glenview as a side business to increase healthy eating options for the community. She is a mother of 3 boys and humbly attempts to balance family, work, and self-care...one day at a time. 

Dr. Mendoza Temple sees patients at the Park Center in Glenview, Illinois. 

 

NORTH SHORE INTEGRATIVE MEDICINE

Youth Panelists

 

Morgan Krug

Morgan was diagnosed with Tourette at age 12. She says that the toughest part about living with TS is the lack of control she has over her body. This impacts a variety of activities for Morgan ranging from daily activities such as making breakfast to higher stake activities such as taking tests.  When Morgan was younger she exhibited several very difficult symptoms including coprolalia.

 

Morgan never let her symptoms stop her! When in junior high, she played volleyball and was on the track and field and cross country teams.  In high school, she played volleyball, and badminton.

 

At age 13, Morgan began attending TS Camp Twitch and Shout in Georgia and later became a counselor.  Morgan also participated in the TS Up To Me pilot program which aims to lessen stigma and promote self-advocacy.

Morgan attends Harper Community College and will be heading off to Northern Illinois University in the fall to study Special Education.

Jeffrey Spaargaren

Jeffrey was at the young age of 7 when he was diagnosed with Tourette. He said he had no idea what it was, but quickly learned because he had to live with it. Throughout most of elementary school, Jeffrey dealt with the odd look from strangers and whispers behind his back but luckily he had a close group of friends and family who helped him through it.

Everything seemed to be going well...until and incident in 3rd grade changed everything.  During a Christmas project, Jeffrey was unable to control his tics and his classmates weren't too lenient with his behavior. After some students asked Jeffrey to stop squeaking, one student told the substitute teacher about the disturbance. The teacher stood up and shouted to the class, "JEFFREY, STOP SQUEAKING LIKE A MOUSE!"  The room rapidly filled with laughter and Jeffrey was fraught with embarrassment.  That evening, he cried in his room thinking about what he should do next. Until it hit him...instead of trying to hide who he was, he would embrace it. And so, several weeks later Jeffrey gave a speech to his peers.  

Ever since that day, Jeffrey has improved drastically in controlling his tics and has embraced the more complex side of him. In high school, Jeffrey ran Cross Country for all four years and though most of his team knew he had TS, it never appeared on the course and rarely when practicing. Now, Jeffrey attends Moraine Valley Community College with a 3.75 GPA and is on the President's List. After Moraine, Jeffrey plans on attending a four year school, most likely to study within the field of science. 

As a youngster, Jeffrey had one goal in mind -- to spread awareness of TS so that no child would be bullied again. And even though now he has many other ambitions, spreading awareness of the disability remains at the top of his list. As Jeffrey says, "I will take this disability and make it a gift."  

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847-800-8781

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